Tuesday, May 31, 2016

A long time coming

I have halfheartedly sat down to write an update on here a number of times over the past few months. Something always comes up to keep me from finishing more than a paragraph. I'm braindead after work; The Voice is back on; the sheer bulk of thoughts and experiences I want to share is overwhelming. How on earth will I condense everything into one post when there's so much I need to get out onto the Internet? But for the sake of my sanity and hopefully to help someone else out there, I am committing to starting to write again. I realize that not every post needs to reveal some epic, thought-provoking "Come to Jesus" moment, though I am certainly working through plenty of those. In writing for a public forum though, I think the most important part is to stay focused and stay true to your purpose. For a long time, I had an easily defined purpose - to share my cancer journey. My cancer journey is no longer the focal point of my life (thank goodness), but my experiences as a survivor, I think, constitute a decent reason to keep writing publicly.

Here's my plan, and here's why: I'm going to keep writing, and I am going to keep writing about my survival. I hereby dedicate my blog to writing about running and hiking and living as much of my life outdoors as I can, despite the fact that my body is close to the edge of wrecked. We have all survived something, and the most thrilling part about it is that we continue to survive and get to enjoy this phenomenal world in which we live!

Cancer destroyed my body's secondary immune system. My blood can no longer produce a specific type of b-cells, immunoglobulins. Various doctors and specialists ranging from immunologists to gastroenterologists to the naturopath I'm currently seeing have all tested my blood extensively to determine the extent of my deficiency. They all agree: I don't make any immuoglobulins. Diagnosis? Hypogammaglobulinemia. Gezundheit. This, they agree on, once each has run the exact same test and seen the exact same results. After which point, their agreement ends. It's pretty amazing and strangely universal in Western medicine - medical tunnel vision. "I specialize in this one thing and so will treat the symptoms you are experiencing for this one thing." So, the immunologist monitors the immunoglobulin replacement therapy I receive at home, monthly. And the GI guy monitors the steroids he prescribed for "nonspecific inflammation" of the intestinal system. And my new naturopath is at least looking at my entire system and trying to figure out why my liver enzymes are elevated while my blood glucose levels are totally normal and my cortisol levels are off the charts and in the meantime, I just desperately want to stop pooping everything out of me that I put into me. More than that, I want to run a full trail marathon in Moab in November, and I'm genuinely not sure my body can pull it off. 

With all of that on my mind, I'm going to write for other people to read about it! In case you've ever wondered what it's like to dive into the GAPS diet and try to consume little to few carbohydrates while training for a summer's worth of backpacking with a potential trail marathon cherry on top, this is the spot for you! There's no way I'll be able to write daily, but I commit to a bit more regularity. How's that for just vague enough?

This will be exciting. Hopefully, it will be cathartic. Even more hopefully, at the end of this grand experiment, my gut will have healed more and my True Health will be back and here to stay. Thanks in advance for your support and for your patronage!!

No comments:

Post a Comment